Anna Jaworski and her husband Frank Jaworski, R.N. have put together a valuable resource for parents who are faced with their child having hypoplastic left heart syndrome. Based on their own experiences with their son, Anna first takes you through her personal experiences and emotions. The book then goes on to discuss the different options parents must consider: surgery, transplantation, or doing nothing. The book also goes into details about the different procedures, what to expect before and after surgery, what social services are available, and gives diagrams to illustrate the defects and corrective procedures. This book is a must for any parent needing to make the difficult decisions about the care of their child.
You can purchase the book directly from the publisher Baby Hearts Press.